Category: events
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The 2026 International Workshop on Alport Syndrome
The 2026 International Workshop on Alport Syndrome will take place in Budapest, Hungary, from 5–7 September 2026. Organised by the Alport Syndrome Alliance (ASA) in collaboration with Alport UK, Semmelweis University and ERKNet, the workshop will bring together patients, researchers, clinicians and industry partners from around the world. The event will showcase the latest developments…
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London Information Day – 4 July 2026
More than 80 people joined us at the Westminster Boating Base in London for our Alport Information Day on 4 July 2026 – and what a fantastic day it was! With glorious sunshine outside and a room full of energy inside, the day was packed with expert talks, inspiring personal stories, meaningful conversations and plenty…
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The 2025 International Workshop on Alport Syndrome
Alport UK led the organisation of this amazing international workshop in the heart of Beijing. We started with an information day for Chinese and other visiting patients. There was a large UK contribution to the science, and international collaborations are increasingly powerful. Watch a video-recap of the workshop on YouTube.
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Alport info day Nottingham 5 July 2025
A great day with local host Dr Matt Hall and a great group of patients and families.
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Cyprus international workshop 14-16 March 2024
Another outstanding meeting was held at the Royal Hall in Nicosia, local host Prof Constantinos Deltas. The first day was entirely for patients, then an intense schedule of science with short breaks for forays into the city. It was attended by over 150 scientists from 19 countries, along with patients, families, and representatives from pharmaceutical…
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Alport Info day – Cardiff 22 April 2023
Dr Sian Griffin and colleagues joined the Alport UK Team for a great day.
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Alport Information Day 31 July 2021
Saturday 31st July from 10am-4pm is an online Alport information day. It’s FREE for patients to join and is open to everyone. Topics: latest clinical trials, nutrition, exercise, and connecting with other patients to share stories plus experts to answer your questions. Register here https://bit.ly/3gzmvcs. The patient day follows a scientific conference, Podocyte 2021, where…
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Hearing workshop 23 June
Join a workshop about hearing – learn tips from patient experiences, find out about the latest hearing devices, and participate in the Q&A. This informal workshop takes place on Wednesday 23rd June at 1900h/7pm BST. Email research@alport.info for Zoom details.
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Podocyte 2021 Patient Day 31 July
Save the Date! Join us at Podocyte 2021 to hear about the latest research, and for great sessions on nutrition, diet and exercise. Patients are very welcome to attend both the Patient Day on 31st July and the main meeting 28th-30th July, free of charge. Further details to follow.
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Young adult session 18 March 7pm
Our first informal chat for 18-35 year old Alport patients happened on Zoom and we’re holding monthly get-togethers with the next session on Thursday 18 March at 7pm/1900GMT. It’s a great opportunity to meet with others, share ideas, get involved with our workshops and gain some useful skills and work experience – so difficult to…