Whether you’re living with Alport syndrome, supporting a loved one, or simply want to stay connected with our work, we’d love you to be part of our community.
Two ways to get involved
There are two ways in which you can join our community:
- As a Free Member
- As a Friend of Alport
Choose the option that’s right for you.
Free Members
As a free member, you will:
- receive our regular newsletter via email.
- hear about events, webinars and information days.
- have opportunities to shape our work through surveys.
- receive updates on the latest Alport research.
- get invited to join the Alport Warriors Facebook group.
- become part of a supportive community of people living with Alport, families and supporters.
All of this for free!
Friends of Alport
Friends of Alport are members of Alport UK who choose to support our work by donating £3 or more each month. Their generosity provides a steady and reliable source of income, helping us plan ahead and continue supporting people living with Alport, raising awareness and driving research.
On top of all free members’ benefits, Friends of Alport also get:
- A special mention in Alport UK’s annual report.
- The invite to an annual online Q&A with Alport UK’s CEO.
For as little as £3 a month, you help us make a real difference for thousands of people living with Alport!
Any questions?
Do you have any questions about our free membership or the Friends of Alport scheme?

